This is a completely different post than you are used to from me. But I think it is very important to post this post. So it’s about my new oxygen glasses. This is in no way a sponsored post. It’s about what these oxygen glasses do for a lung patient that needs extra oxygen.
Did I fool you?
Many of you know that I have a hereditary progressive lung disease. You can read my story about it here. Well you may think, well I don’t see anything on her. That’s right. For example, on my blog, especially the outfit posts, I do not carry my oxygen supply with me, that is possible for half an hour. And I never wear glasses indoors. My oxygen glasses are for when I go out the house. I also often hear that I look so energetic in the photos. That is also correct, I enjoy taking the photos and I am a very energetic person……for a lung patient.
What you don’t see is that after a shoot I first have to recover for 30 minutes and when I do two shoots in a row, I burst with pain in my body. What you don’t see are the worries about the future, my frustration when I’m out of breath etc. etc. So don’t let me fool you! LOL. But I am a very optimistic and happy person! Back to the oxygen glasses.
3D printed oxygen glasses
I’ve been using supplemental oxygen for almost 7 years, and the first 20 months were just horrifying because I didn’t have oxygen glasses back then and ran my hose over my face when I left home. Which resulted in a lot of staring and feeling very unhappy. After a long search, I found out that I could order oxygen glasses from the US.
I was incredibly happy with my first pair of glasses! What a difference it made. But those glasses are made of steel and very fragile and quite heavy. And then I was approached by Jeroen van Aspyro. Jeroen and Lien were busy producing 3d printed oxygen glasses. Whether I was interested in testing the glasses and sharing my findings with them! Well I was over the moon! To make a long story a bit shorter, I now have 3d printed oxygen glasses!
Oxygen glasses make the difference
I immediately took it to the optician to have the right lenses put in. By the way, Aspyro can also do this, but I have my own optician here in the village and I found that more convenient. You can also have fake glasses put in, of course, but when driving a car and cycling I do need prescription glasses!
The reason I write an entire post about these glasses is that this is so incredibly important for lung patients who use oxygen. Imagine what it would be like to go out with a tube in your face. That feels awful. First, you are even more aware that you are sick, second that staring really pushes your confidence into the ground. Glasses like this one make the difference!
Then why am I so happy with this one, I already had one anyway? Because this is a more modern frame, at the moment there is a choice of two colors, but Aspyro will expand that, they are much lighter glasses, you hardly feel that you are wearing them. And you can try out a frame! You can contact Jeroen and Lien with all your questions and they help you quickly and very friendly. I also want to add that, my contact with them was super nice, two such driven and friendly young people! I really wish them all the success with their company!
My custom made bag
The black bag I am wearing is custom made. The portable concentrator comes with an ugly bag as standard. So I started looking for someone who makes bags and together with her I designed this bag. It was quite a job, because the bag must enclose the concentrator properly and there must be ventilation holes in the right places. When Corona is over, I would like another brown bag!
So if you are, or do know a lung patient who uses oxygen, point her or him to the oxygen glasses! Living with lung disease is hard enough, but these glasses make it a lot more wearable!